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Chronic Health Issues

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April 30th, 2014

sickgirl40 @ 07:09 pm: Unknown disease
I have been dealing with an unknown autoimmune disease since 2010. It started with more starting to fall and not Being able to feel temp and sensation on my left leg then it jumped to my right leg. It then went all the way up my body to the top of my head. Then I started to get eye pain and losing my eye sight that is when I was told I have optic neuritis. I have been in and out of the hospital and had test after test done and still nothing. Right now I am considered legally blind in my left eye and my right eye is not doing very good. I am now having problems walking on my right side and am very scared.

January 22nd, 2014

baratron @ 02:01 am: People who live in cold climates
Can you tell me how you dress in the winter?

I live in the UK, near London, where it is typically 10 deg C (50 deg F) outdoors in the winter. I am about to go to Canada for a few weeks, where it will be more like -10 deg C (14 deg F). Not sure about windchill factor.

I have chronic fatigue syndrome, and tend to be cold all the time. I also use a wheelchair.

What sort of clothes do I need? And how do you dress if it's -10 degrees C outside and 20 degrees C inside? I'd generally assume that when it's -10 degrees, you want to wear thermal baselayers - but I wouldn't want to wear thermal underwear indoors. So I'm trying to figure out what order you put the layers on in.

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January 14th, 2013

freerxplus @ 09:07 pm: Monday - January 13th, 2013
Hi !!

It has been a couple of days since I have posted here.
I did get an email regarding purchasing "Health" Insurance - it was divided up into 3 sections and you picked the section that best suited you.
When I worked for a company that set appts for health insurance - there were some companies that thought they might pay the tax instead of offering their employees health insurance. They felt that it would be cheaper. There is more people without health insurance. It will be interested to see how it goes.

Have a good night !!!!!!

January 5th, 2013

freerxplus @ 07:40 pm: January 5th, 2013 - Health Insurance Exchanges Go Online
Health Insurance Exchanges Go Online

The development of state-based health insurance exchanges may be the most interesting thing to watch this year. These virtual marketplaces will allow uninsured people and small businesses to
compare and enroll in health plans online. Through these exchanges will people learn if they qualify for federal tax subsidies to help cover the cost of insurance. According to the law, Exchanges must be up and running by Oct. 1, 2013. Time will tell if this can actually be done on time.

States were given the option to build their own exchanges and had until Dec. 14 to decide. Here is how the States decisions broke down:
•18 States (and the District of Columbia) agreed to build their own.
•7 States have opted for a partnership exchange - a model where the states and federal government work together to operate the marketplace.
•25 States that declined to participate and will therefore have federal government put in place health insurance exchanges.

Don't forget to download your Free Discount Prescription Card at www.freerxplus.com/FRP01223

Current Mood: happyhappy

January 3rd, 2013

freerxplus @ 06:58 pm: Thursday Evening !!!! Jan 3rd, 2013
Hi !!!!

The last couple of days have been busy.

I haven't had time to do any research on healthcare. I am hoping to this weekend. Saturday here in S. Fl is suppose to rain.

If you haven't gotten your FREE card - go to: www.freerxplus.com/FRP01223

Have a good night !!!!

May 11th, 2012

sammason @ 12:54 am: volunteers needed for new research
Hello everybody

I've been lurking on this comm for a while. Now I've been asked to post the recruitment ad below. The researcher is a personal friend of mine so I know that she's genuine. If you'd like to contact her, please use the contact details she gives below. She says this:

My name is Jessica Worner, and I am looking for volunteers to take part in a research project that I am doing as part of a Social Psychology MSc degree at the University of Surrey.
The research aims to look at the experiences of people who would describe themselves as disabled with a physical impairment or as having a physical disability, and who also identify as lesbian, gay, bisexual or otherwise do not identify as heterosexual.
To help me do this, I am looking for volunteers to take part in informal and confidential interviews that will last up to 90 minutes.
It is hoped that by doing this research, a better understanding may be gained of some of the experiences and issues faced by LGB people with physical disabilities.
To take part in interviews, you must be over 18 years of age and currently live in the UK.
If you are interested in taking part, or would like any more information about the research, please feel free to contact me via email at jw00073@surrey.ac.uk or by calling 07783 267006.


June 18th, 2011

redtoffee @ 12:44 am: My treatment at Breakspear hospital and other things you can do to help ME/CFS and IBD
Breakspear Hospital

The truth is, I do recommend Breakspear. I will tell you the truth and see if you want to go down that path. You can read my journal entries here to find out what I have been having done at Breakspear. Although I do need to update for this year. http://www.caringbridge.org/visit/lauradunks/journal

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May 25th, 2011

redtoffee @ 11:19 pm: 6 hours left to vote for ME/CFS research and other neuroimmune illnesses
Just a reminder if you havent voted yet for the WPI...

We are in twelfth place and still dropping (the WPI) - currently entitled to $40000. We are risking losing the money at all. Please tell everyone you know to vote. It only takes two ticks and there is 6 hours left. Imagine what could be done with the money.

The WPI research into other illnesses like autism and fibromyalgia.

Instructions here: http://bit.ly/mCvKVM

Thank you.


May 21st, 2011

redtoffee @ 09:33 pm: Please vote for ME research in 2 competitions
Imaging what these grants could achieve for ME/CFS research!


This facebook group has links to the sites and instructions.

Please vote daily for the WPI to receive $125000 through Vivint for less than 3 more days.

Please vote for the WPI to receive $500000 through chase community giving. One off vote. Also vote for CFIDS assoc of America here http://apps.facebook.com/chasecommunitygiving/charities/205904991-whittemore-peterson-institute-for-neuro-immune-disease?src=twitter

Thank you!


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